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ADD at the Balance Center

Yesterday was my appointment with Dr. D, the dizziness specialist at Ear Nose and Throat Associates. After waiting an hour, Pam and I were ushered into a tiny room, and a few minutes later, Dr. D came in.

I explained how I’d been diagnosed with Meniere’s Disease, and that my experience over the past several years was consistent with all the research I’d done about Meniere’s Disease. But now, it seemed that my symptoms had gone to another level. I used the term “Meniere’s Disease” several times.

After some more talk, Dr. D said, “You may have a condition we call Meniere’s Disease.” And he went on to explain it, while I was thinking, “Oh crap.”

In other words, he hadn’t been paying attention to anything I told him. Was probably thinking, “Great, another patient with an amateur diagnosis of a very complicated medical condition.” He let me ramble on, get it out of my system, until he could take over, rush things along, and try to get back on schedule.

Well, anyway, he gave me a couple prescriptions–one for when a vertigo episode strikes, another to help remove salt from my system (basically, by making me run to the restroom every five minutes). I’ll take a test on June 2 at ENT’s Balance Center which will confirm that, yes, indeed, Dr. D is brilliantly correct: I do have Meniere’s Disease. And we’ll go from there.

I am totally inspired with confidence.

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My Meniere’s Surgery, One Year Later

After my surgery, with Jordi.

Exactly one year ago, Pam and I were at a surgical center in Carmel, Ind., on the north side of Indianapolis. I had surgery to place (brace yourself) an endolymphatic shunt behind my left ear.  The day after tax season ended for Pam, we got it done. The shunt would alleviate the vertigo symptoms of Meniere’s Disease, which I’d been battling since 2004. Now, when pressure builds up in my ear, a precursor to vertigo, fluid—in this case, only a couple drops, from what I understand—is channeled into the shunt.

Dr. Jerry House, an Indianapolis specialist, performed the surgery. I had been going to a well-regarded specialist in Fort Wayne, but he just kept prescribing more and more pills to take, and wouldn’t agree that I definitely had Meniere’s (which had been diagnosed several years before). I finally left his office with yet another prescription which I never filled.

I learned about Dr. House through my family doctor, and set up an appointment. He’s been around this block many times. After hearing my story and running me through a hearing test, he said, “You have Meniere’s Disease. Here are some things we can do for it.” He then presented the various surgical options, starting with the endolymphatic shunt, which was the least invasive and had a high success rate (90% after the first year, 70% after three years). Even though Dr. House is 90 miles away, Pam and I agree that switching to him was the best thing we could have done.

Because Meniere’s is such an erratic thing—it can go away for months at a time—I figured I wouldn’t have a good handle on how the shunt was working until the end of the year or later. So now it’s been a whole year. My evaluation?

It’s been a big, big help. I very rarely experience vertigo, and when I do, it is much less severe than before. I felt the shunt really starting to work around June. Sometimes I could sense a battle of sorts occurring in my head, with the shunt winning. My body would tell me, “You’re heading for a bad episode in a couple hours.” But it would never materialize.

I entered a period where it seemed like Meniere’s was pretty much gone from my life. Then, in July, I had acute pancreatitis, followed by the removal of my gall bladder. In early August I began experiencing some vertigo, and by the end of September it had gotten pretty bad, with vomiting episodes on consecutive days. I went to see Dr. House. He told me that acute pancreatitis messes up lots of body systems. He was surprised I didn’t have vertigo symptoms during my hospital stay. He said to just give it more time, and my body would get back in balance.

And that’s exactly what happened. Within a couple weeks, I was feeling great. Pam and I went on vacation, and I had no symptoms, and very few since then. From October to March, I was pretty much Meniere’s-free.

Ironically, as this anniversary occurs, I’ve been dealing with some vertigo issues. Two weeks ago, I had two nausea and vomiting episodes, which I just have to sleep off. But I hadn’t experienced that since September.

I’ve also had about 4 episodes of what is called a “nystagmus,” which is a brief attack where the eyes jerk back and forth quickly. I’ve had a few other episodes of nystagmus since September, usually traceable to a salty meal or too much intense work at the computer.

Vision is seriously impaired, but it lasts only 20 seconds or so. But the feeling of vertigo—of imbalance and unsteadiness—is minimized. So it’s nothing severe, nothing I can’t live with. But it’s there, a feeling in my head that things aren’t in balance. I’ve been carefully watching my intake of salt and caffeine.

I know it’ll eventually go away. Meniere’s cycles in and out like that. Dr. House told me, the only predictable thing about Meniere’s is that it’s unpredictable. As I write, it’s been a week since the last nystagmus (which occurred as I was waking up last Sunday morning). In a couple weeks, I’ll probably feel normal.

So again—my evaluation of the endolymphatic shunt surgery?

It’s been a huge help to me, and I have zero regrets about undergoing the surgery. I experience a small fraction of the vertigo I experienced before, and when I do, it is minimized, not nearly as severe. I still need to watch the usual Meniere’s triggers—salt, caffeine, and stress (the fourth trigger, alcohol, is a non-issue with this lifelong abstainer). I get to feeling so good that I sometimes get cocky, indulging a bit in salt and caffeine intake—and for the most part, I’ve gotten away with it. But a smart person, which I can be on occasion, would engage in moderation ALL of the time.


My various posts about the surgery:

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The Rise and Inevitable Fall of Keith Olberman

I’m delighted about the departure of Keith Olberman from MSNBC.

Not because of his liberal views. There’s room for that on TV, and should be. After all, we’ve got a whole network devoted exclusively to conservative views. If MSNBC wants to commit their evening line-up to a weak counter-balance to FoxNews, that’s fine. There’s an audience for that.

And not because Olberman lacks ability. The guy is extremely talented. “Countdown” showed a lot of creativity. As a writer, I’ve always admired Olberman’s dexterity as a wordsmith; he could really turn a phrase, and knew how to do it with humor, which isn’t as easy as you think. He always seemed, to me, quite bright, though without the political background which provides knowledge and insight, which you find with the likes of Joe Scarborough, Britt Hume, and Chris Matthews.

In that way, Olberman was akin to Glenn Beck. Beck spent most of his career as a morning shock jock, and only gained an interest in politics when his Top 40-DJ career was waning and he realized he needed a new gig; talk radio was just then taking off, and he decided that’s where his future lay. Olberman got his start in sports, where he became a rock star of sorts with Dan Patrick on SportsCenter. But in turning to political punditry, he’s had to learn on the job. His lack of depth, like Beck’s, is apparent. Though Olberman avoids the wild-eyed rantings of Beck.

No, the reason I bid a happy adieu to Olberman has to do with character issues. His smugness. Inflated ego. Pomposity. Arrogance. Sense of self-importance. His inner diva.

In 2008, I read a New Yorker profile on Olberman called “One Angry Man.” As I’ve written before, nobody does profiles as well as the New Yorker. In this profile, Olberman’s arrogance and diva nature shone through, and I remember thinking, “This guy will someday implode.” To me, it was just a matter of time before he and MSNBC reached an unhappy parting. (I predict the same meltdown will happen with Glenn Beck, eventually.)

I’ve read for years about how the mainstay NBC news personalities disliked Olberman (and MSNBC’s nighttime line-up in general), because of the overt partisanship. People like Brian Williams and Tom Brokaw felt that Olberman’s blatant liberalism unfairly tarnished the image of the NBC news division, and I agree. Williams, Brokaw, and the other NBC mainstream journalists kept their distance from Olberman.

Sean Hannity recently interviewed Sarah Palin. That’s like Ken interviewing Barbie. Totally softball stuff. Likewise, I remember, during the presidential campaign, when Olberman landed an interview with Barack Obama. Olberman slobbered all over Obama, trying to be chummy and not ask anything confrontative. It was pathetic, and Obama seemed embarrassed by it. There are only scraps of journalist in Olberman.

This partisanship is why I despise both the MSNBC nighttime programs and the entirety of FoxNews. It’s not journalism. And it’s not truth. When your focus is to tear down the other side–whether it’s the Republicans or the Democrats–and to never say anything good about the other, then you’re not interested in truth. You’re just a puppet, a spouter of talking points. FoxNews no longer makes any pretense about being an objective news organization. MSNBC wants to have it both ways. Both networks know the audience they are trying to reach–the choirs they preach to, the people who care less about light than about having their preconceived views affirmed. And that’s not me. I’m in nobody’s choir.

As with Bill O’Reilly and others, there have been stories of Olberman being a diva around his staff. That always turns me off.

Speaking of O’Reilly: Olberman regularly attacked him, often placing him among that day’s candidates for “Worst Person in the World.” O’Reilly, instead of responding to Olberman, smartly went above him to attack General Electric, the parent company. O’Reilly found many excuses to unfairly demonize GE. This didn’t please GE.

I suspect that Comcast, the new parent company, was not excited about becoming O’Reilly’s new target of derision. If O’Reilly told viewers to cancel their Comcast subscription and switch to another carrier, tens of thousands of them would mindlessly obey.

During the Bush years, I grew to like Olberman. He was speaking about things which were a deep concern to me, particularly in regard to the wars and torture. But increasingly, he became shrill, and his sense of self-importance clouded everything. Then one night he ended an otherwise okay “Special Comment” piece by saying, “Mr. Bush: Shut the hell up.”

That’s when he totally lost me. That was way, way over my line.

Olberman was definitely good for MSNBC. During his eight years as “Countdown” host, he did what Phil Donahue, Alan Keyes, and a whole bunch of other bigger names couldn’t: he created an audience for the MSNBC evening shows, and he did it on talent alone (being an unknown, that’s all he had). So kudos for that.

But his ego did him in. And yet another unhappy parting–an Olberman trademark–occurred. An ESPN executive once said of Olberman’s departure, “He didn’t burn bridges here. He napalmed them.” I’m sure that’s the case once again.

Where will Olberman turn up next? Beats me. Probably on radio. I don’t see any TV network making a place for him.

Interestingly, Olberman’s TV spot is being filled by Lawrence O’Donnell, whose ego rivals Olberman’s. He lacks Olberman’s talent, but does bring political depth. But I suspect he’ll self-implode, too. As will Ed Schultz, who is taking O’Donnell’s previous spot. Chris Matthews and Rachel Maddow are the only sane ones in the line-up. In my view. And Matthews is the only one I care to watch.

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Now Proud Owner of an Endolymphatic Shunt

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Jordi helps me display my big bandage.

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Jordi and Molly kept me company throughout the night (click to enlarge).

On April 16, I had an endolymphatic shunt placed behind my left ear. The operation was done by Dr. Jerry House at the Carmel Surgery Center in Indianapolis (by St. Vincent’s Hospital on Meridian, just a couple miles north of the I-465 bypass).

The surgery was done at 2 p.m. and lasted about 70 minutes. Everything went great. We were on the road back home to Fort Wayne about 4:45. Hopefully, the operation will eliminate most of the vertigo and other symptoms of Meniere’s Disease, which I’ve battled since around 2003.

Thus far, I’ve been spared three common side-effects:

  • The operation can trigger severe nausea and vertigo which can last a couple weeks. I’ve had zero nausea.
  • The ear, or whole side of the face, can be puffed out significantly. I have very little swelling.
  • I was warned that there can be significant pain the first day or two. I’m taking Vicodin, but I’m not sure I need to. The discomfort is minimal.

I came home with a big bandage, which we removed Saturday morning. We had to remove the left arm of my glasses in order to fit them on around the bandage.

I spent the evening on the couch in the living room, alternating between dozing and reading Robert Parker’s “Stranger in Paradise.” Since it was plenty comfy, I just stayed there throughout the night. Besides, my sleep patterns were all messed up. I ended up watching “Bangkok Dangerous,” a Nicholas Cage movie, in the early morning hours. Pretty good movie.

The symptoms of Meniere’s Disease started around 2003, though it was a couple years before it was diagnosed. Meniere’s causes frequent vertigo and hearing loss. It only affects my left ear; I’ve lost about 60% of my hearing in that ear and have tinnitus, a constant background roar, which I’ve learned to not really notice.

There is no cure for Meniere’s. However, several surgeries can offset the symptoms. The endolymphatic shunt is the least invasive. When pressure builds up, which brings on the vertigo, fluid (only a couple drops) will now be diverted into this shunt and then absorbed into the surrounding membrane. The surgery is 90% successful immediately, and about 70% successful after 3-5 years (2 out of 10 people revert to how they were before the surgery).

I could have had the surgery done here in Fort Wayne. However, I didn’t have confidence in the doctor here. He’s good, and lots of people speak highly of him, but he didn’t seem to pay much attention to things I told him, and kept prescribing more and more pills. I wrote about that experience.

My family doctor, John Carnes, tracked down the name of Jerry House, whom one of his other patients had used. Pam and I immediately liked him. He’s very personable, quickly acknowledged my symptoms as Meniere’s Disease, and pulled out great metaphors to clearly explain what was happening. He’s done zillions of these operations.

When the nurse at the surgical center was prepping me, I asked, “Do you always work with Dr. House?”

She said, “It just depends on who they assign me to. But when we get assigned to Dr. House, we know it’s going to be a good day.”

She then sang further praises–he was kind, considerate, professional, and was always the same. “With some doctors, you’re not sure what you’ll get that day.”


My various posts about the surgery:

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